• Hardcover
• 228
• Babyface A Story of Heart and Bones
• Jeanne McDermott
• English
• 06 August 2020
• 9781890627157

Jeanne McDermott õ 5 Read & Download

Download Babyface A Story of Heart and Bones Free read à PDF, eBook or Kindle ePUB free õ Jeanne McDermott Jeanne McDermott õ 5 Read & Download Enetic and ethical uestions regarding disability; beliefs about beauty; and what it means to be hum Non fiction Jeanne lives in Cambridge MA Her son Nathaniel has Aperts syndrome the brain plates are fused

Download Babyface A Story of Heart and Bones Free read à PDF, eBook or Kindle ePUB free õ Jeanne McDermott Jeanne McDermott õ 5 Read & Download De down It explores her circumstances on many levels Her own and her family's emotional survival; g Hard to know how I would rate this book if I wasn t reading it in response to a family member born with Apert Syndrome Obviously that gave me a deeper connection to the book but I think I would ve really liked it regardless it s a well written account of a beautiful difficult journey traveled with hope and optimism

Download Babyface A Story of Heart and Bones

Download Babyface A Story of Heart and Bones Free read à PDF, eBook or Kindle ePUB free õ Jeanne McDermott Jeanne McDermott õ 5 Read & Download A memoir that offers an intimate look at how her ideas of perfection and wholeness were turned upsi This book definitely belongs to a particular genre the mommy coming to terms with disability of a child for the first time memoir It is not unlike expecting Adam except instead of Downs Syndrome her child has a much rare craniofacial disease Apert Syndrome I had never heard of Apert syndrome before reading this book Because the author was a science writer by profession her discription of the disease and her child s treatments is incredibly detailed Many children with Apert syndrome develop average cognitive abilities in the average seuencealthough often a tad delayed due to physical limitations in infancy It is interesting to consider how this feature may color one s interactions with health professionals when compared to say Downs Syndrome The author is far less critical of the medical establishment than is typical of this genre If anything distinguishes this book it is the fact that it does not alienate medical or special education professionals as much as most parental disability rights memoirs This is really incredible when considering how much time these parents spent in the hospital while their child had multiple back to back surgeries in the first few years of life This mommy seems to totally get it when it comes to medical culture she sees the people behind their professional roles